COLUMBUS— Rep. Randi Clites (D-Ravenna) today announced the unanimous passage of House Bill (HB) 412, bipartisan legislation joint-sponsored by Rep. Tim Ginter (R-Salem) that will create the Ohio Rare Disease Advisory Council.


“In passing this legislation today, the Ohio House paves the way for providing the expertise that lawmakers need to solve the issues facing those living with a rare disease,” said Rep. Clites. “This act will create better healthcare policy in the state, and deliver better access to government to those living with a rare disease.”


The bill would bring together medical researchers, physicians, nurses, patients, lawmakers and state officials to begin addressing many of the issues facing those living with rare diseases.


“As legislators, we work for you, and creating a dedicated council focused on the lives and experiences of patients and families living with rare diseases will give us the opportunity to improve care in our state,” said Rep. Clites. “Better health outcomes for Ohioans with a rare disease means better healthcare for all Ohioans.” 


Ten percent of Americans live with a rare disease. Of the 7,000 known rare diseases, some 90 percent still do not have FDA-approved treatment options.


House Bill 412 was passed out of the House and now heads to the Ohio Senate for further consideration.

 
 
 
  
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