Rep. Rogers' Dravet Syndrome Bill To Be Signed Into Law
Legislation unanimously passes Ohio Senate
December 02, 2014
 
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Today, the Ohio Senate unanimously passed House Bill 270, Rep. John Roger’s (D-Mentor-on-the-Lake) bill to designate October 16 as “Dravet Syndrome Awareness Day.” 


Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Many infants with Dravet syndrome have upwards of 30-50 prolonged seizures on a daily basis, which can cause developmental delays, movement and balance issues, delayed speech, sleeping difficulties and other disruptions to the central nervous system.


“It is important to bring greater recognition to the children afflicted by Dravet, and to raise awareness of the serious, life-changing challenges Dravet imposes on too many kids and families.” said Rep. Rogers. “By raising awareness, we can come closer to finding a cure and providing better treatment. I sincerely thank my colleagues Sens. Eklund, Jones and Faber for acting on this legislation, and it is my hope the Governor will soon join us in our fight against Dravet by signing the bill into law.”


Rep. Rogers, a first-term lawmaker, decided to pursue the measure after meeting a young girl who has been battling the disease since infancy. 


 

 
 
 
  
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