"Dravet Syndrome Awareness Day" Closer To Being Recognized By State
Rep. John Rogers' bill to dedicate October 16 unanimously passes Ohio House
February 13, 2014
 
[ John M. Rogers Home | John M. Rogers Press ]
 
 

State Rep. John Rogers (D-Mentor-on-the-Lake) applauded Wednesday's unanimous House passage of his bill to establish October 16 as “Dravet Syndrome Awareness Day.” 


“Increasing public awareness and understanding of Dravet Syndrome will bring more attention to this devastating disorder, and by doing so, could increase resources necessary for research and development of a treatment,” said Rep. Rogers. “I’ve seen the tragic effects of Dravet on the individuals and families facing this debilitating disease. They deserve a greater voice and need our help to raise awareness.”


Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy, is a rare and catastrophic form of epilepsy that begins in infancy. Many infants with Dravet syndrome have upwards of 30-50 prolonged seizures on a daily basis, which can cause developmental delays, movement and balance issues, delayed speech, sleeping difficulties and other disruptions to the central nervous system.


H.B. 270 now moves to the Ohio Senate where it will soon be assigned to a standing committee for further consideration.

 
 
 
  
Featured Posts